It is estimated that 8000 youth in Wisconsin, ages 0-14, have active epilepsy. Every child’s epilepsy is unique, in that it affects individuals different ways.
We strive to provide support for all children.
Wisconsin Lions Camp
Teens Speak Up!
The Teens Speak Up! & Public Policy Institute (TSU-PPI) is the Foundation's signature advocacy initiative. This biennial conference brings together more than 175 advocates, including local Epilepsy Foundation office staff, families, health care providers, and volunteers from across the country to make a difference. Teens living with epilepsy and a family member have the opportunity to visit the nation's capital to receive advocacy training and meet with their lawmakers to share their experiences and discuss issues that are vital to the epilepsy community.
These passionate young advocates help to represent the 470,000 children living with the epilepsies when they go up on Capitol Hill. It is also an incredible opportunity for teens – and their families – to connect with each other. Each teen is asked to turn their training into action in their respective home districts through a Year of Service. Through this program, participants learn the latest about epilepsy, their rights and governmental happenings and we strengthen our nationwide advocacy network.
This program takes place every other year.
Camp Phoenix provides a fun, safe, and residential camping experience for youth with a primary diagnosis of epilepsy.
During the week, campers participate in a variety of activities, building new and lasting relationships. Campers have the opportunity to meet others who may have a similar seizure disorder.
Information:
Dates: July 13-17, 2025
Age range is 6-17
Campers are encouraged to fully participate in all camp activities. Counselors are present to facilitate small group activities and one-on-one discussion. There is medical staff on site and all staff is fully trained in seizure recognition and first aid.